Monthly Archives: April 2014

Hidden Heroes

The blisters have nearly healed. It’s been almost three weeks since I traveled DC with a marvelous group of nearly 60 men and women who are part of the Elizabeth Dole Foundation’s Caregiver Fellows Program.  During this trip I reconnected with old friends and met new friends I’ve only known online.  We spent time sharing our stories and experiences with one another and forging a special bond that can only be felt by those who have been through similar experiences.  And we walked for miles on the endless marble and concrete that is Capitol Hill.

We spent Thursday on Capitol Hill meeting individually with our congressional leaders to present the findings of the newly released RAND study Hidden Heroes:  America’s Military Caregivers and to explain why this study matters, why these statistics are more than numbers on a page, and to give a face to the 5.5 million military and veteran caregivers in our nation.

That morning Senator Patty Murray introduced S.2243 – Military and Veteran Caregiver Services Improvement Act of 2014. A related bill was previously introduced in the House by Representative Elizabeth Etsy. H.R.3383 – Caregivers Expansion and Improvement Act of 2013. You can watch Senator Murry introduce her bill here Murray Introduces Major Military and Veteran Caregiver Bill.

On Friday we attended a Joining Forces event at the White House where First Lady Michelle Obama and Dr. Jill Biden, along with former First Lady Rosalynn Carter and Senator Dole, announced programs and initiatives designed to support caregivers of the nation’s veterans and active duty service members. You can watch these announcements at this link Support for Military and Veterans’ Caregivers.

While being invited to the White House (and sitting in the front row!) was immensely exciting, the event had a larger impact as I looked around the White House reception and realized that everywhere I looked was the familiar face of a caregiver.  For the first time ever we had a collective voice on a national level, a voice that reached far beyond the walls of the White House into the homes of other caregivers who, like us, have been fighting for years to be heard.

Empowering.  To be part of a group gathered with common concerns and goals working to make changes in our own lives, and the lives of others.  To reflect on the past eight years and recall how utterly alone I felt when this journey started.  To realize, at last, it was time to address the needs of the caregivers.  We will not be still.

Learn more about the Elizabeth Dole Foundation and Hidden Heroes:  The National Coalition for Military Caregivers at www.elizabethdolefoundation.org.

You can read the entire RAND report entitled  Hidden Heroes:  America’s Military Caregivers at this link http://www.rand.org/pubs/research_reports/RR499.html.

#DoleFellows #hiddenheroes

Cherry Blossoms in full bloom

Cherry Blossoms in full bloom

Dole Fellows with Congresswoman Susan Davis, Senator Elizabeth Dole, and Congresswoman Nancy Pelosi

Dole Fellows with Congresswoman Susan Davis, Senator Elizabeth Dole, and Congresswoman Nancy Pelosi

White House

The White House

Front and nearly center in the East Room

Front and nearly center in the East Room


I’m melting!

I’m tired, therefore, this post isn’t up to par.  I’m including it simply to satisfy my compulsive need to tell the complete story in chronological order.

Ohhh! You cursed brat! Look what you've done! I'm melting! Melting! Oh, what a world! What a world!

Ohhh! You cursed brat! Look what you’ve done! I’m melting! Melting! Oh, what a world! What a world!!

After nearly seven years (long, incredibly frustrating years), Sean officially retired from the US Army Reserve on February 11, 2014. Hallelujah!

A process that consumed our lives for many years…a bittersweet ending for a soldier who dedicated his life to serving his country…a relief for his wife who has grown weary of fighting systems that should be designed to help.

So, while the Oz saga from Ft. Riley has played itself out and the Wicked Witch has met her demise (if you’ve been following our blog, this makes sense, I swear), it was not without getting in a final jab. I was required to become Sean’s legal guardian in order for him to “obtain any and all retirement benefits during his lifetime” due to an incompetency ruling.

Recap:

March 2007- ineligible for medical board due to “unexplained physical symptoms” (undiagnosed PTSD and TBI)

July 2007 – PTSD diagnosed

December 2007 –  TBI screening

March 2008 – TBI diagnosed, medical evaluation board (MEB) initiated

April 2008 to January 2010- nooooooothing……

January 2010 – testified before House Committee on Veterans Affairs regarding “Seamless Transition” between DoD and VA systems

February to May 2010 – multiple appointments

June to November 2010 – multiple complaints to get MEB paperwork completed

2011 – mostly nothing……

<insert intermission>

January 2012 – OOPS, case was terminated in June 2011 (Ft. Riley claimed we missed a deadline that we were not informed of, we were not notified that the case had been terminated)

June 2012 – records sent to Ft. McCoy to start new MEB under IDES

<insert theme from “Jeopardy”>

February 2013 – records arrived in Ft. Carson

March to May 2013 – repeat all examinations, tests, and paperwork from 2010 as it was all expired

June 2013 – MEB NARSUM sent to Physical Evaluation Board (PEB)

December 2013 – PEB rated 100% vision loss due to TBI, and 70% PTSD

January 2014 – notified that due to incompetency statement in NARSUM a legal guardian would need to be appointed, POA was not sufficient for payment/benefit purposes

February 2014 – officially medically retired

Bout damn time.