Monthly Archives: June 2011

Some Wounds Don’t Heal

So, I re-read the blog this weekend and checked all my links. . .

Things that struck me as I read:

  • Sean was gone for 642 days
  • I thought if we could figure out what it was, we could figure out how to deal with it.
  • The fight it took to get him medical care.
  • The fight it took to get him home.
  • We have been struggling to get him appropriate care/diagnosis on one side of the fence or the other for FIVE years!
  • I look at how far we have come with getting his symptoms under control and wonder what he would be like w/o meds. . .
  • It is what it is. . . and now that we know what it is, what do we do with it?
  • The sadness is completely and totally overwhelming even now.  I wept over many posts as I read, and it was a rerun.  I cannot believe the emotional impact this still  has on me.

I wonder if the pain we feel will ever feel better.  I wonder if there will ever come a time when we aren’t wishing we were better prepared, or better informed, or more stable.  I wonder if these wounds will ever heal.

    Traumatic Brain Injury Survival Guide

    Traumatic Brain Injury Survival Guide

    Another excellent resource!

    Traumatic Brain Injury: A Guide for Caregivers of Service Members and Veterans

    Traumatic Brain Injury: A Guide for Caregivers of Service Members and Veterans

    Excellent resource!

    "A Creed for a Comrade"–In honor of suicide prevention month

    “A Creed for a Comrade”–In honor of suicide prevention month 

    Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury (DCoE) PSA for Suicide Prevention Awareness Month

    Understanding PTSD and How to Make a Difference

    Fantastic article from Family of a Vet at
    Understanding PTSD and How to Make a Difference

    Amazing Songs

    Crazy Being Home
    Mark Wills

    We Know You’re Out There
    Kory Brunson
    A Letter Home
    Gina Gonzalez of the Lt. Dan Band sings her original song.

    Gotta Love It

    I LOVE it when things go right! 

    Today’s to-do list included making follow-up calls to the ombudsman at Ft. Riley, Sean’s case manager at the VA, and Sean’s FRC. 

    Sean’s FRC called just a few minutes ago and had already spoken to the other two people on my list.  She gave me an updated status on all outstanding issues, so now I don’t have to call anyone!


    Cycling Camp Nationals

    USA Cycling National Championships
    Sean has been selected to participate in a pre-race cycling camp during the last week in June in Augusta, Georgia. This camp will be run during the week of the USA Cycling Road Nationals, and racing at nationals will be part of the camp.

    This camp is a pre-race preparation camp. The goal is to help riders learn the necessary steps to prepare for a high level competition, including reviewing the course ahead of the races, preparing mentally and physically for best performance, going over race equipment and concluding with racing at the national road race championships

    Sean has been working with a coach from Carmichael Training Systems for the past five months by using his stationary bike, training hub, and computer.  He has put more than 3,000 miles on his bike already!  Each week his coach assigns practice drills and riding routines for Sean to follow to improve his speed, stamina, and power. 

    This will be an exciting trip for Sean as he is moving his paralympic tandem cycling up a level.  He is hoping to qualify and move up the list of cycling levels.  Good luck, Sean!!